It is often very difficult to find the appropriate words to express one's frustration with not being in control of the path you will travel with this disease. However, we can often find empathy and strength from the words of others with these conditions. Here you can express yourself and share the thoughts you have with me about lifes ups and downs with these kinds of diseases. Good Luck! There exists a natural bond between those of us who must endure all the ramifications of these diseases. I enjoy so much meeting with others who share my same difficulties with life and the constant need for medical attention and occasionally interventions! It only increases the trust and bond between the patient and the doctor. I found the support and the friendship that exits between the many people I have encounter with similar trials and medicine routines to be a very bonding experience. And one that only patients in this situation can understand!
Comment: Dropping in to say hello and that I love you!!!
Name: Kathy Savickas
Email: savickask@comcast.net
Welcome Page:
Country: USA
IP Address: 68.42.135.148
Date: 16 Jul 2008 17:17:41 GMT
Comment: Your website is something else. Very well done, the pics are great and your history pages are informative and fun to read. You are brave for showing pictures during the difficult times. I admire you for that and know that it will help others. When I was that puffy and bloated, I refused to have pictures taken and threw away any that slipped in. You have an amazing attitude and feel lucky to have met you at the VF Symposium. You left an impression on me - you reminded me of some of the things that are so worth fighting for - like life, happiness and family. Congratulations on all of your accomplishments and may things continue to go well for you. Kathy
Name: JIM KNIGHT
Email: J.JAMESKNIGHT@COMCAST.NET
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IP Address: 24.63.47.44
Date: 24 Aug 2008 23:18:48 GMT
Comment: TRY AND KEEP AS UPBEAT AS YOU POSSIBLY CAN. IT IS SO IMPORTANT THAT YOU MAINTAIN A HEALTHY AND POSITIVE ATTITUDE DURING THESE TIMES. THINGS WILL GET BETTER FOR YOU AS YOUR TREATMENT CONTINUES AND NEW ADVANCES IN MEDICINE WORK THEIR WAY IN. WE ARE ALL ROOTING FOR YOU
Name: Heather Ray
Email:
Welcome Page:
Country: USA
IP Address: 32.149.227.178
Date: 27 Sep 2008 22:03:56 GMT
Comment: Kate, thank you for your email last night and for the link to your website. You are a remarkable young woman and you are making a difference in people's lives by sharing your story. Please continue to take care of yourself and to update your website. I plan to share this with my husband and you may be the only way I can convince him to get back on the prednisone! Again, thank you! I appreciate it more than you'll ever know! Heather
Name: Stephanie Federico
Email: stephlynsadow@yahoo.com
Welcome Page:
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IP Address: 76.119.244.195
Date: 15 Oct 2008 17:13:47 GMT
Comment: Hello love, I just want to let you know that I love you. I just want to remind you to take it easy and don't overdue yourself especially because you have a birthday coming up soon. we need you in excellent health.
Name: Kelly Barrette
Email: kellyb947@cox.net
Welcome Page:
Country: USA
IP Address: 158.123.20.189
Date: 20 Nov 2008 18:15:43 GMT
Comment: Hi Kate - I met you at the Boston chapter meeting of the VF on 11/18/08. You seem so full of life that it's hard to believe that you still struggle with CSS. Hope to see you at the walk in May so we can talk some more. (My mom was recently diagnosed with CSS and the Boston meeting was the first VF event that I've attended.) Keep thinking positive! Kelly Barrette Woonsocket, RI
Name: Dan H
Email: danbh@bellsouth.net
Welcome Page:
Country: USA
IP Address: 74.233.174.49
Date: 16 Jan 2009 11:21:33 GMT
Comment: Great web page! Keep up the good work and thanks for the Singular info. I was taking it for a quite while before I was diagnosed with CCS and did think that maybe it was the cause but who knows I no longer take it. Good luck with everything.
Name: Winnie
Email:
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IP Address: 12.42.50.52
Date: 3 Mar 2009 20:07:41 GMT
Comment: Congrats on becomming a soon to be aunt!!! XOXO
Name: Miss Joy
Email: karawayte@yahoo.com
Welcome Page:
Country:
IP Address: 12.42.50.51
Date: 25 Mar 2009 15:57:22 GMT
Comment: I was looking for some new updates and photos of the site. Love ya!! MUAH
Name: Jennifer (Burke) Boivin
Email: burkee@aol.com
Welcome Page:
Country: USA
IP Address: 98.175.174.100
Date: 20 Jul 2009 23:40:52 GMT
Comment: Hey Kate! It's been ages.. just wanted to say hello and send you best wishes! I enjoyed your web page because it is the positive side of what often feels very ugly, I'm sure. I enjoyed seeing your smile and accomplishments! Keep on smilin' lady!
Name: Becki Martin
Email:
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IP Address: 63.66.112.5
Date: 3 Aug 2009 17:14:56 GMT
Comment: Kate Tierney, you are my hero. Fo Shizzle.
Name: Caitlin
Email:
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IP Address: 65.96.30.197
Date: 4 Aug 2009 03:22:53 GMT
Comment: Kate, you are the strongest person I know! You are so inspiring! Such a wonderful person, keep your head up high :)
Name: Chris Wayte
Email: chriswayte@yahoo.com
Welcome Page:
Country:
IP Address: 70.181.3.133
Date: 9 Aug 2009 03:01:26 GMT
Comment: Kate, Whats up? Jace sais Hi
Name: Lew Newmark
Email: snewmark@hvc.rr.com
Welcome Page: http://www.mlcss.com
Country: USA
IP Address: 69.206.78.89
Date: 11 Aug 2009 10:50:51 GMT
Comment: Hi Kate. I was diagnosed with CSS last year...one year now and counting. I am starting a support group in the town I live in, and do regular posts om my blog, and after I get a few other matters attended to I will start my efforts to raise funding for CSS and other vascular diseases. Lew
Name: Linda Brown
Email: osulinbrown@aol.com
Welcome Page:
Country: USA
Date: 2 Sep 2009 02:21:39 GMT
Comment: Hi Kate, I have been thinking about you a lot. I see your posts on the CSS site sometimes. I see what wonderful things you are doing. I will never forget what you and your mom did for me when Kev got so sick. If you ever need anything, you know I'm always here for you and I always will be. Love you. Don't ever give up, Kate. You have done remarkable things in spite of CSS. Maybe one day there will be a cure and you and Kev and everybody else with it can finally breathe easily. I pray for that everyday.
Name: Matt Sadowski
Email: mjsadowski@suffolk.edu
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Date: 9 Sep 2009 16:52:04 GMT
Comment: Hey Kate! I wish I could be at the golf tournament but I am in Boston. I just started grad school and am working like crazy. Good luck with everything! I'm sure it will go well.
Name: Bob & Elaine Sahs
Email: AAGolf@aol.com
Welcome Page:
Country: USA
Date: 15 Sep 2009 21:16:24 GMT
Comment: Kate This was the first time I visited your site and all I can say is WOW, Great Job. Also, Elaine & I had a fantastic time at your 2009 Western Mass Vascilitis Open Golf tournament. Please express our personal thanks to not only your Mom, Dad and Sisters, but to all your friends and volunteers as well; especially Carl Cieplinski for carrying Elaine & I for 18 grueling but most enjoyable 18 holes of Golf. Stay Well! Bob & Elaine
Name: Lynn Corwin
Email: annabelle3@hotmail.com
Welcome Page:
Country: USA
Date: 18 Sep 2009 22:20:55 GMT
Comment: Kate: This is the 2nd time I've read your story, and you are beyond amazing. You inspire us all to work more and fight harder to raise awareness and research money for CSS. I'm delighted to be on the CSSA Board with you, and I hope I have the privilege of meeting you in person at the symposium. You help us all keep our spirits up with your wonderful attitude...God bless.
Name: mary meliski
Email: marymax1017@hotmail.com
Welcome Page:
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Date: 23 Feb 2010 17:03:06 GMT
Comment: Hi to All, I will fight this disease forever because I am not going to let it win!